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About Sonny

About Sonny

Sonny is a beautiful, caring and outgoing 5-year-old boy who has just recently been diagnosed with Duchenne Muscular Dystrophy. 

Sonny absolutely loves dinosaurs! His clothes all have dinosaurs on them, the movies he watch all include dinosaurs and the books he read - are all about dinosaurs. You could call it an infatuation. He really is dinosaur obsessed! Hence why he has a dinosaur webstore for fundraising!

Sonny is the youngest of his family. His family consists mum and dad, Renee and Chris and brothers and siblings - Chloe, Trinity, Seth and Dylan.

Left to right - Auntie...


Treatment Options

Treatment Options

There's no cure for any form of muscular dystrophy. But treatment can help prevent or reduce problems in the joints and spine to allow people with muscular dystrophy to remain mobile as long as possible. Treatment options include medications, physical and occupational therapy, and surgical and other procedures.

Medications

Your doctor may recommend:

  • Eteplirsen (Exondys 51), the first medication to be approved by the Food and Drug Administration specifically to treat Duchenne muscular dystrophy. It was approved conditionally in 2016 and will continue to be evaluated during an additional two years of use.

    Although the medication...


What is DMD?

What is DMD?

Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness. It is one of nine types of muscular dystrophy.

DMD is caused by an absence of dystrophin, a protein that helps keep muscle cells intact. Symptom onset is in early childhood, usually between ages 3 and 5. The disease primarily affects boys, but in rare cases it can affect girls.

What are the symptoms of DMD?

Muscle weakness can begin as early as age 3, first affecting the muscles of the hips, pelvic area, thighs and shoulders, and later the skeletal (voluntary) muscles in the...